Clive Lewis MP was the first to respond |
On Thursday I got an email from a carer who had reapplied for her profoundly disabled son's Blue Badge discovered that under the new rules he no longer qualified. He had had the badge since 2004.
This woman was understandable devastated. She explained how precious this Badge was for her son's safety in accessing public spaces and how the loss of it would turn him into a prisoner in his own home.
She had no idea how she was going to cope. She had seen my Blue Badge Campaign blog on Brent Council's website. The only council, including my own, who had posted the campaign and petition.
I asked her if she had contacted her MP. She said she didn't know who her MP was.
After helping her to identify her MP, Dawn Butler, I realised that for many people caught up in the day to day business of being disabled in the UK today, or consumed with caring for those they love with disabilities, politics is the last issue on their list.
Yet politics is vital in shaping the lives we lead. I wondered what the issues are that MP's are contacted over and also wondered if disabled people and carers know that MP's do place their needs on the agenda.
So I set myself a task. I decided to contact every MP on twitter and ask them to tweet about the issues which disabled constituents and carers, bring to their MP's for help with. I used the fact that the local elections are imminent and this seemed to some to be a confusing platform.
I was very pleased with the responses, from Labour, Lib Dems and Tory MP's and from disabled people, carers and activists using the hashtag as a place to tweet about disability issues.
I hope I managed to thank all the MP's who contributed because I'm very grateful that they did.
In the end I tweeted 505 MP's over a two day period.
I was particularly delighted to see people contacting their MP's and arranging to meet with them for help.
As yet no party leader has tweeted their constituents concerns.
38 Labour MP's replied
12 Tory MP's replied
4 LibDem MP's replied
No Cabinet Ministers replied
3 Shadow Cabinet ministers replied - Both Debbie Abrahams And Andrew Gwynne tweeted and Dawn Butler said she was going to tweet.
I was surprised not to see a tweet from Caroline Lucas who is both party leader and the only Green Party MP. I think she might have missed it.
There were hundreds of responses from disabled people and for a while #TweetForDisabledPeople was trending.
There are 13,000,000 disabled people in the UK.
I feel the campaign was an opportunity to show disabled people aren't completely forgotten by all the people who decide the policy which shapes so many lives. I'm incredibly grateful to all MP's who engaged with the campaign. My life as an autistic woman has been shaped by policy. The lives of my two children who are autistic and Emily who is learning disabled are affected everyday by the policies made in the House of Commons.
Whether its issues around health, education, disability benefits or a Blue Parking Badge, its vital that our politicians understand the difference they make. x
I’ve been genuinely shocked at the cruelty of the DWP in dealing with disabled people since being elected. People in need are being denied the help they need. Theses cuts cost more than they save & cause considerable pain and distress to disabled people #TweetForDisabledPeople— Luke Pollard MP (@LukePollard) April 26, 2018
One of the worst cases I have had was when the medical team of a constituent of mine contacted me to say he was refusing lifesaving surgery (he had a brain tumour) because he was frightened of being sanctioned. This Govt should hang their heads in shame. #TweetforDisabledPeople— Debbie Abrahams MP (@Debbie_abrahams) April 26, 2018
I have too many heartbreaking meetings with disabled constituents who are struggling to get the support they are entitled to - whether it's LAs dragging their feet on adjustments to peoples homes or DWP assessments stripping them of financial assistance #TweetForDisabledPeople https://t.co/MroDGjWQDj— Ruth Smeeth MP (@RuthSmeeth) April 26, 2018
With the help of my caseworkers, I have helped to overturn 75%+ of PIP refusals through our representations to the DWP. This shows how broken the assessment system is. We must have a system that works for disabled people not against. #TweetForDisabledPeople https://t.co/mc1TD4rwAO— Catherine West (@CatherineWest1) April 26, 2018
A major issue that disabled constituents in Warwick and Leamington face is the significant number of PIP cases and poor treatment by the DWP. The assessment system is inappropriate and does not treat people as human beings #TweetForDisabledPeople https://t.co/uPFpVkJuZF— Matt Western MP (@MattWestern_) April 26, 2018
Every time I meet disabled people being humiliated & penalised through PIP assessments it reinforces why we need #ToriesOut #TweetForDisabledPeople— Sarah Champion (@SarahChampionMP) April 26, 2018
#TweetForDisabledPeople Poor access to public transport is something lots of people contact me about. It's impossible for many disabled people to use peak time trains, you have to be physically fit to squeeze yourself on board, and that denies people work and social opportunities https://t.co/Cpr3GQU3LJ— David Crausby (@DavidCrausby) April 26, 2018
I recently had a constituent who ended up being sanctioned for a Year because his disability left him unable to cope with the stress & rules DWP impose & they left him with nothing. Now sorted thank goodness #TweetForDisabledPeople— Maria Eagle MP (@meaglemp) April 27, 2018
Whether it’s having to go through the indignity of a WCA followed by an appeal to access ESA; or struggling to cope while DLA to PIP conversion happens and then inexplicably losing points...my caseload of full of people who are being let down. #TweetForDisabledPeople https://t.co/TY8YSoM803— Gareth Snell MP (@gareth_snell) April 27, 2018
The issues my disabled constituents raise with me the most are the fight they often face having to secure the support & care packages they are entitled to and being able to access venues (bars/restaurants etc) in town #TweetForDisabledPeople @MrsNickyClark— Luciana Berger (@lucianaberger) April 27, 2018
Many of my disabled constituents report a number of issues that affect them at local level - recurring theme of inadequate access to facilities such as toilets & changing rooms for them and their carers #TweetForDisabledPeople Thanks to @MrsNickyClark @TheHazelBowden for raising— Andrew Gwynne MP (@GwynneMP) April 26, 2018
My constituents @focusbirmingham especially those who are visually impaired have raised the difficulty in voting alone as ballot papers are not available in Braille. #TweetforDisabledPeople— Preet Kaur Gill MP (@PreetKGillMP) April 26, 2018
I am hearing from a lot of disabled ppl who are losing out when they move from DLA to PIP resulting in a big loss of independence. Many many people losing motability cars. Huge issue. #TweetForDisabledPeople https://t.co/jwv53mnO3A— John Cryer (@JohnCryerMP) April 26, 2018
The issue that local government is responsible for that disabled constituents often raise with me is how hard it is for the disabled or sight-impaired to get around because of disabled-unfriendly crossings, pavements, buses etc.#TweetForDisabledPeople https://t.co/pDvXzxP3kY— Ben Bradshaw (@BenPBradshaw) April 27, 2018
A social security system which seems to make it deliberately difficult for disabled people to obtain the help & support they require #TweetforDisabledPeople— Lilian Greenwood (@LilianGreenwood) April 26, 2018
My disabled constituents & their carers still face the challenge of the #BedroomTax. Also, an increasing number are losing their #Motability entitlement which is severely affecting their independence. #TweetForDisabledPeople https://t.co/FH9VXDf26N— Liz McInnes (@LizMcInnes_MP) April 27, 2018
Many carers and disabled constituents in Bath are seriously concerned about funding structures for mental health. Worth adding that carers for people with disabilities save the NHS huge amounts of money, and should be celebrated for it! #TweetForDisabledPeople @MrsNickyClark— Wera Hobhouse MP (@Wera_Hobhouse) April 27, 2018
Fitness assessments, which often scare people because of the horror stories that people face are a massive burden on disabled people #TweetForDisabledPeople https://t.co/s6lX5EG1Ir— Jim Cunningham MP (@jimforcovsouth) April 27, 2018
#TweetForDisabledPeople Hi Nicky - so many issues, where to start? Pavement parking - public attitudes - but biggest issue is punitive benefits regime- Universal Credit could have been liberating if done properly- instead it is penalising those who need most support— Sandy Martin (@sandyofipswich) April 27, 2018
Thank you @MrsNickyClark - many big challenges including access to work, impact of changes to benefits notably PIP & ESA and state of local pavements @PamThomas01 @WillamShortall @BradburyF @MSDP_Charity @MNDPatients @MNDA_Merseyside #TweetForDisabledPeople— Stephen Twigg (@StephenTwigg) April 26, 2018
PIP reassesments for people disabled with terminal illnesses like #MotorNeuroneDisease is a big issue I have been campaigning with @mndassoc with. #TweetForDisabledPeople Thanks Nicky— Andrew Lewer (@ALewerMBE) April 27, 2018
My friend @Debbie_abrahams raised this with the minister today who refused to apologise for the recent UN report which described ‘grave systematic violations against disabled people in this country.’ Disabled people deserve better #TweetForDisabledPeople— Afzal Khan MP (@Afzal4Gorton) April 26, 2018
An issue for my constituents with #dementia is that they are losing benefits when being moved from #DLA to #PIP, and don’t have the expertise to appeal. Unsuitable housing is also a problem. #TweetforDisabledPeople— Eleanor Smith (@Eleanor_SmithMP) April 26, 2018
Hi Nicky, biggest issue I hear is access to entitlements almost always involve struggle and fights with the system. Not on and we’re trying to change it. Especially for SEND young people. #TweetForDisabledPeople https://t.co/pg0zQdNgRf— James Frith MP (@JamesFrith) April 26, 2018
From young people to elderly, support & provision for disabled people is often found wanting. I’m dealing with a failing Special Educational Needs & Disability provision in schools & supporting Blue Badge applicants through a system designed to frustrate #TweetForDisabledPeople— Rosie Cooper (@rosie4westlancs) April 27, 2018
By a comfortable margin, the issue that is raised most often by my disabled constituents is the PIP Assessment Process (particular problems for those who have problems travelling to an assessment centre) and unfair decisions that we then have to contest #TweetForDisabledPeople https://t.co/UH19MXfqaM— Matthew Pennycook MP (@mtpennycook) April 26, 2018
A man in my office turned down for PIP and is at ESA tribunal is not able to get his medication as he doesn't qualify for prescription exemption so he has to pick eating or medication. He is now suffering hallucinations and is struggling to breath. #TweetForDisabledPeople— Jess Phillips (@jessphillips) April 27, 2018
Hi Nicky & thanks for the tweet: access to work and how to educate employers and businesses about the potential of people with disabilities is a big issue. Secondly, making sure that carers have access to info about assessments & access to respite support #TweetforDisabledPeople— Robert Buckland (@RobertBuckland) April 28, 2018
We deal with a wide and varied case load on disabled issues, which I can't go into any detail on, for obvious reasons, but the recurring themes are definitely around pavement parking and disabled access— Craig Tracey MP (@craig4nwarks) April 27, 2018
Lots of correspondence regarding cars parking on pavements & bins left on pavements. Making it difficult to get past in wheelchairs.— Andrea Jenkyns MP (@andreajenkyns) April 27, 2018
Hi Nicky, my constituency office is disabled friendly and I am keen to raise any local issues to assist disabled constituents. pic.twitter.com/c2THjFGmcV— Douglas Ross MP (@Douglas4Moray) April 27, 2018
Key issues my team and I help with are around accessibility and making sure disabled constituents access all the benefits they are entitled to— Luke Graham OSP MP (@LukeGrahamMP) April 27, 2018
Diagnosis and support for autism (or lack of) is one of the most regular issues in my surgeries and casework. https://t.co/pJycAiuKvS— Anne-Marie Trevelyan (@annietrev) April 27, 2018
Hi Nicky - big focus recently on #ChangingPlaces - I was pleased to meet campaigners and we are looking at what more can be provided locally— Caroline Dinenage (@cj_dinenage) April 27, 2018
Hi Nicky,— Scott Mann (@scottmann4NC) April 27, 2018
Easily my biggest issue disabled people face is access to historic buildings for town and parish council meetings. #tweetsfordisabledpeople
Local constituents have come to me highlighting problems around public transport and A-boards for the visually impaired. (Worth saying I don't have local elections in my constituency)— Matt Warman MP (@mattwarman) April 27, 2018
#TweetForDisabledPeople access to public transport is still a challenge. Some local railway stations still don’t have disabled access as campaigned for by @emmadonaldson05— Mark Spencer (@Mark_Spencer) April 27, 2018
I chair our local physical disabilities board and there are sadly too many but poorly designed infrastructure, public transport and accessible leisure services feature regularly— Tracey Crouch (@tracey_crouch) April 27, 2018
I may get a different impression from those involved in local elections but most common issues I encounter for those with disabilities are PIP assessments, lack of respite care & Access to Work funding https://t.co/4aSYbS9RL8— Steve McCabe (@steve_mccabe) April 26, 2018
Oh so many. Biggest has been lack of Changing Places Toilets. Another recent one is car parks that put height restrictions forgetting that disability vehicles now cannot pass. The one I’m campaigning on is access and enactment of EHCPs so all children get the help then need— Layla Moran (@LaylaMoran) April 26, 2018
Difficulty getting PIP and ESA.— Helen Goodman (@HelenGoodmanMP) April 26, 2018
Disabled people are facing cutbacks to their personal budgets which can have a big impact on quality of life. And too many people with a learning disability still remain in institutional care, too often breaching their human rights. https://t.co/Hwuy6dR9vl— Norman Lamb (@normanlamb) April 26, 2018
Two main things Pip and mobility cars and cuts to support for carers making it even harder for them https://t.co/7sSC8rzJpL— Angela Eagle (@angelaeagle) April 26, 2018
Many of my disabled constituents report a number of issues that affect them at local level - recurring theme of inadequate access to facilities such as toilets & changing rooms for them and their carers #TweetForDisabledPeople Thanks to @MrsNickyClark @TheHazelBowden for raising— Andrew Gwynne MP (@GwynneMP) April 26, 2018
It’s really hard to find care providers who will look after my disabled or elderly residents who are spread across wide rural geography!— Heidi Allen (@heidiallen75) April 26, 2018
Assessments for ESA and PIP. Dehumanising and so often wrong. We had a constituent in yesterday who said his assessment report referred to him as a woman, we see assessment reports that bear no resemblance to the constituent, we see outcomes that don’t meet needs of constituents. https://t.co/46ikQdyFLs— Wes Streeting MP (@wesstreeting) April 26, 2018